Johnson Family

Tuesday, April 25, 2006

Completed Erbitux Treatments
We had our last Erbitux treatment yesterday and will have a CT on Thursday, May 4th to see
if it has been effective. We really need everyone's prayers because I think we are getting to the end of the line as far as chemos are concerned. We have just about tried all of them without any success. We just need that divine intervention of a miracle that only God can send to us. I know it is possible if it is His Will.

Sam did manage to change the oil and filter and rotate the tires on the Tahoe this past weekend.
He absolutely refuses to let anyone but himself work on his vehicles. He supervised me while I
managed to get our sprinkler system working. I actually took the pump to the river, wired it, primed it and all 90 sprinklers popped their little heads up out of the ground. He was proud of me. He even showed me how to change out a sprinkler head when it wasn't working properly.

Eating for him is still an ordeal. He had only lost 1/2 lb. since last week so that wasn't too bad.
Hopefully we can go forward instead of backward. He is not nauseated - just hates the sight of food. Other than him feeling crappy all of the time, we are still hanging in there and he is still working everyday. I guess things could be worse. Our prayers are still with everyone and especially Kelly since she is having her surgery this week.

Tuesday, April 11, 2006

4th Erbitux Treatment
Somewhere along the way, Sam and I got the impression that since the Erbitux was not being combined with another chemo (Camptosar that has really bad side effects), that it was going to be smooth sailing or at least not as bad as the other chemos that he has taken. We couldn't have been more mistaken. He has not had a good day in almost two weeks. He got really sick going to Birmingham yesterday and had to pull off the road and let me drive. When we got to the infusion clinic they considered not giving him a treatment because he felt so bad but his blood work did not show anything unusual so they went ahead with it. The oncology nurse told me to quit trying to make him eat when he didn't feel like it - just make sure he got plenty of liquids and continue with the Boost and ProSure. She also suggested making a small milkshake and adding Carnation Instant Breakfast.

If you include the oral Xeloda that Sam started taking back in October 2004, he has had 78 chemo treatments. I still think he hated the Oxaliplatin more than any of the others. It's time for us to get some good news - maybe the Erbitux is the answer to all of our prayers.

Thursday, April 06, 2006

3rd Erbitux Treatment
Not much news - we went to Birmingham this past Monday for his treatment. The rash on his face, neck, back and chest is really bad but it doesn't bother him. He said that was the "least of his worries". I was reading the Clements and Stouffer blog this morning and they both said you never know what to expect with Cancer; everyday is so different! This is sooooooo true. Sam will feel pretty good one day and then absolutely awful the next day. Lately it has been more bad days than good days. Eating is still a major ordeal - no appetite whatsoever. He is still working everyday. It's a good thing we both work at the same place because between me and his secretary, we really push the Boost and ProSure down him; he hates to see us coming.
Everyone hang in there!