Different Turn
Just as I thought - we are headed in an entirely different direction. We cannot get in the trial right not; apparently there is not an opening??? This is how our doctor appointment went today. Dr. Posey has had such good results with a patient that he is treating with Herceptin that he wants to run some tests on Sam's liver tumor for EGFR (epidermal growth factor). Sam's liver surgery was performed at UAB so they should have everything they need to perform these tests. Why are we just now doing this - I don't know. I guess it's because nothing else has worked for Sam. Right now it looks as if we are going to try Camptosar and add either Erbitux or Herceptin to the chemo cocktail depending upon staining results of the liver biopsy. All of Sam's blood work looked really good so that was a positive note. I understand that Dr. Posey and his patient were on a television program last night in Birmingham discussing her treatment. I do hate so much that we didn't know about it in time to tune in. I am trying to get touch with her so I can tell her about the cholangiocarcinoma.org web site; I am sure she can provide us with some valuable information. She has done extremely well with her treatment for over four years and gives all of the credit to Dr. Posey so I feel confident with his direction for us. Dr. Posey did advise Sam to start taking some pain medication - HOORAY!!!! I think his quality of life will be so much better and when Sam does good, I do too. He also advised Sam to start drinking ProSure so I ordered a case today. I asked Dr. Posey several questions about the different chemo regimens and bottom line is that I think it is a guessing game. There just hasn't been enough research done on this type cancer - what works on one person doesn't work on another. As he said before, there is nothing out there with a strong track record so we just have to keep trying and continue praying. Sam still hasn't missed any work so that is something to be thankful for. We actually got back from Bimingham about 1:30 this afternoon after getting up at 3:30 this morning. Guess where he is - back at work this afternoon - doesn't surprise me at all.
Just as I thought - we are headed in an entirely different direction. We cannot get in the trial right not; apparently there is not an opening??? This is how our doctor appointment went today. Dr. Posey has had such good results with a patient that he is treating with Herceptin that he wants to run some tests on Sam's liver tumor for EGFR (epidermal growth factor). Sam's liver surgery was performed at UAB so they should have everything they need to perform these tests. Why are we just now doing this - I don't know. I guess it's because nothing else has worked for Sam. Right now it looks as if we are going to try Camptosar and add either Erbitux or Herceptin to the chemo cocktail depending upon staining results of the liver biopsy. All of Sam's blood work looked really good so that was a positive note. I understand that Dr. Posey and his patient were on a television program last night in Birmingham discussing her treatment. I do hate so much that we didn't know about it in time to tune in. I am trying to get touch with her so I can tell her about the cholangiocarcinoma.org web site; I am sure she can provide us with some valuable information. She has done extremely well with her treatment for over four years and gives all of the credit to Dr. Posey so I feel confident with his direction for us. Dr. Posey did advise Sam to start taking some pain medication - HOORAY!!!! I think his quality of life will be so much better and when Sam does good, I do too. He also advised Sam to start drinking ProSure so I ordered a case today. I asked Dr. Posey several questions about the different chemo regimens and bottom line is that I think it is a guessing game. There just hasn't been enough research done on this type cancer - what works on one person doesn't work on another. As he said before, there is nothing out there with a strong track record so we just have to keep trying and continue praying. Sam still hasn't missed any work so that is something to be thankful for. We actually got back from Bimingham about 1:30 this afternoon after getting up at 3:30 this morning. Guess where he is - back at work this afternoon - doesn't surprise me at all.
posted by Betty Johnson | 12:39 PM
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